Data Priorities

Data Priorities

Correlate genome with claims & statistical data

In addition to clinical data, tie in claims data. Test feasibility of using CMS virtual data center in conjunction with the NCI cloud to link data. Other multipayer claims databases may also offer longitudinal claims histories.

 

Bring in statistical data, particularly from longitudinal studies (NLSY, HRES, NHANES) and those that have collected biospecimens. (develop standardized re-consent form)

Submitted by

Voting

2 votes
Active

Data Priorities

Provide data subsets for download and tool development

Subsets of large data sets should be provided for download to test local tools and for development of pipelines before they are uploaded to the cloud.

Submitted by

Voting

2 votes
Active

Data Priorities

Patient Access

Allow patients and their doctors to access data about them securely

Submitted by

Voting

0 votes
Active

Data Priorities

Longitudinal sequencing

Longitudinal sequencing: obtain the samples from patients at different time points. For examples, biopsy at diagnosis, pretreatment, post-treatment, and relaps

Submitted by

Voting

0 votes
Active